A Glimpse Behind the Scenes – Living with Epilepsy Part 1

 In Behind the Scenes

November is National Epilepsy Awareness month and we’ve decided to share our story.

Living with a husband struggling with epilepsy since he was 18 and all our married life has certainly been a challenge. When you are young and in love and the epilepsy is under control then it doesn’t matter.

We had been married a couple years when I witnessed my first grand mal seizure. My husband was working two jobs and had forgotten his medicine for a few days. The baby was playing with the phone and in my panic I couldn’t get it to work in order to call 911. It seemed like ages before I finally got that call in and the ambulance showed up to take him to the hospital and bring his med levels back to normal.

We’ve trusted God for healing and believed in healing only to find that God has chosen not to heal him right now. Both of us have had miraculous healings for other issues – just not the epilepsy.  About twelve years ago my husband was driving and he started to roll through a red light. I didn’t understand what was going on. It was his first partial complex that we experienced and time for a med change. The dilantin no longer worked. And so it was the beginning of a very long journey of trying meds, going through KeppRage, switching to a new med, trying to add a second one – all to stop the partial complex seizures. Everything would be fine, we’d go see the Dr and then within a couple weeks he’d begin having partial complex seizures and we were back to the struggle of trying to come up with away to control these break through seizures that just wouldn’t be controlled.

Through the years I began balloon twisting, started entertaining at birthday parties and then began decorating and deliveries. Because my husband had a good job at a local dealership I was able to stay at home with the kids during the week and put my earnings from birthday parties and other events back into business expenses.

After a few years our neurologist let us know that he was going into a new practice. Because he was going into pediatrics we could not keep him. We now had to decide whether to stay with the same practice or to look for a new Doctor. Follow us on Facebook, Instagram and LinkedIn to find out what decision we made and for parts 2 and 3 of our story on living with epilepsy.  And we always appreciate our faithful customers and new customers. It’s because of people like you that we are able to be your local balloon artists. We’d love to have you visit our balloon shop at https://upstateballooncompany.com/balloonshop or call us at  518.522.8212. We have your favorite colors and balloons ready for delivery in the capital region. If you are interested in coupons and monthly news sign up for our email list at http://eepurl.com/dCN1n9


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